Hi all. I was diagnosed in 2001. Barometric pressure changes are the worst offender to me. I wonder if anyone else has this symptom. I was pretty fine over the past winter (it was a dry one) and then this spring hit me like a ton of bricks. Because I did not take meds other than the water pill, I also did not do my exercises. Last week I finally went to the doctor who said to get back on the exercises and meds. Now when I do the exercises, I am so dizzy I have to go to bed. Guess it is because i am so de-conditioned. Is anyone else also experiencing this?

I no longer feel comfortable driving further than 8 miles, can only do 1-2- things a day and rest the next. Sitting in a recliner all the way back is the most comfortable position for me. but it is certainly not an active one. I don't know what I would do if I had to run to the corner of the block.

Any input from anyone else on what you are experiencing would be most welcomed. I have not discussed injections with my doctor. I would think he might say I am not that bad. This disease certainly is restrictive - that is for sure. I find it difficult to be around people moving too fast in front of me, and have difficulty looking down. My head feels like I am wearing a helmet on my right side. The left side feels like a hoard of locusts (tinnitus) all the time.

I have heard that depression with this illness is quite common, in fact, it can be worse than having depression with a terminal illness as we do not know when it will subside or increase or hopefully, go away on its own. I have heard of people as young s 10 years old getting it, do I guess I am lucky. It sure foes take the joy out of free living." Also casnnot race where in the family this might have come from.

My doctor thinks I might benefit from the Mennitt device I am sort of thinking of going for a second opinion.. There does not seem to be much advancement with this illness anywhere that I have seen. Would also like to know of progressive treatments available that might help.

Thanks for any input or experiences you have had. Hugs to you all - I know I can use that!

Leanie