Blogs

Toward Freedom from Vertigo

Hello. I live and work in a Midwestern state. I have been fighting against Meniere's disease for more than two years. Recently I started a blog to share my story with other fellow patients. Please check it out and share your comments if you are interested. Thank you.

Login Problems Have Now Been Fixed

It appears we were experiences problems with our login. I do believe it is fixed now. Please let me know if you are still experiencing problems. Thank you.

Exercise?

I'm new to this forum. I wondered if people are really sticking to the low salt diet. It is hard. I have been doing pretty well but have been eating chocolate for the last several days. And I think it has caught up with me. I know I am getting an episode when my jaw feels tense and tight, And I start sweating a lot and have a little hard time swallowing. It always happens always in the morning. Any thoughts on other people's symptoms and how to keep from getting it in the morning.

intratympanic gentoamicin treatment

I'm a sufferer - 3 years. I'm looking into the above treatment - an injection into the inner ear. I'd like to hear from people that have tried it - or contemplated it but decided against. I have tried the 'search' tool but can't find any info. Surely this is a topic that must have been discussed here?
Whealie

SERC

Has anyone tried SERC, or betahistine?
It is not offered in the U.S., but I've read they prescribed it other countries.

Does Meritin work...has anyone tried this....?

My name is Chuck Adams and new to this site,I live in Calgary Canada,and have been living with this disease for just over a year now,,,Glad to be on this forum knowing I am not alone,I have tried various things to no avail,and recently a friend let me know about Meritin.com,I apologise if this is a topic already covered,,But am curious to know of the valadity of this treatment,if anyone has tried it,,,,

Thanks you
Chuck

Another day of hell

Today was another day of vertigo. I have been so good with my salt intake and medications. Living 15 years with this and don't know what else to do. I am scared to get into the car with my girls and on pins and needles of when the next episode is going to happen. Does anyone have any success stories of surgery? I am going to talk to my doctor about surgery options this week.

Klonopin

I have had Meniers for 23 yrs-hearing gone on left side and now moved over to right side and on bad days, hearing at 38% understandability-good days 80%. Balance attacks coming at least once a day-was taking valium and meclazine to control- walking around in a fog. Had 3 steroid injections and they did not touch the balance but made the good hearing days more frequent, so that was good. Finally doc said no more shots and prescribed Klonopin taken 1 a day for 2 wks, then incr to 2 for 2 wks then 3 if needed so it builds up in system over time.

Acupuncture

I would really like to know anyone's experiences with acupuncture as it relates to this disorder?

Getting Worse

I have been a support board user for another concern for some time and it has been a big help. I thought I would try a Menire's support board because I really would like more information for this disease which I have had for about 3 years. The first year I noticed the symptoms I was bounced around from doctor to doctor until one finally suspected Menires. I was sent to the Otology Group at Vanderbilt University where I got the definite diagnosis. I was told very little about what I could do about Menires other than ditch the salt and learn to relax. Wow, tough to do.

Syndicate content