Toward Freedom from Vertigo

Hello. I live and work in a Midwestern state. I have been fighting against Meniere's disease for more than two years. Recently I started a blog to share my story with other fellow patients. Please check it out and share your comments if you are interested. Thank you.

Hello

After many years of inactivity, my meniere's has flared up. It started with suddenl with a "drop attack" in the parking lot of a Wal-mart. It the was the strangest thing. All I remember is hearing a :"pop" in my left ear and I was suddently grabbing the hand cart. It felt like someone has pulled out the ground from under me. Scrared the heck out of my wife. I recovered within a minute. I have never had anything like this. My first symptoms appreared over 30 years ago. It has never been an issue with me, except that it is always in the back of my mind. Especially, when driving.

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Exercise?

I'm new to this forum. I wondered if people are really sticking to the low salt diet. It is hard. I have been doing pretty well but have been eating chocolate for the last several days. And I think it has caught up with me. I know I am getting an episode when my jaw feels tense and tight, And I start sweating a lot and have a little hard time swallowing. It always happens always in the morning. Any thoughts on other people's symptoms and how to keep from getting it in the morning.

intratympanic gentoamicin treatment

I'm a sufferer - 3 years. I'm looking into the above treatment - an injection into the inner ear. I'd like to hear from people that have tried it - or contemplated it but decided against. I have tried the 'search' tool but can't find any info. Surely this is a topic that must have been discussed here?
Whealie

new to meneires

Hi im Kath im 46 and a psychiatricnurse. I began having 'attacks' at the end of June 09 and they have been getting more frequesnt and more intense. They have happened at work on several occasions usually on a night shift!!! I have had numerous tests on my inner ear and have been diagnosed with meneires.

I am currently going through the painful task of salt reduction and am taking serc.

As my job involed driving for hours to get there I have secured a new job closer to home - only they dont know about the meneires.......

what's worked for me

Hello I'm new here.
I was diagnosed with Meniere's June of 2006. I had the usual symptoms.
It got so bad in 2008 I was having 4 vertigo attacks a day, almost every day, for a year.
Over in Japan they found that Meniere's is probably caused by herpes virus attached to the cochlea.
L-lysine is a cheap, OTC anti-herpetic you can get at Walmart, or any grocery or drug store.
I started taking 3000mg a day on an empty stomach in December of 2008. I take 1000mg 3 X daily, between meals on an empty stomach (if the lysine is taken with food it will not bind to the virus).

SERC

Has anyone tried SERC, or betahistine?
It is not offered in the U.S., but I've read they prescribed it other countries.

Does Meritin work...has anyone tried this....?

My name is Chuck Adams and new to this site,I live in Calgary Canada,and have been living with this disease for just over a year now,,,Glad to be on this forum knowing I am not alone,I have tried various things to no avail,and recently a friend let me know about Meritin.com,I apologise if this is a topic already covered,,But am curious to know of the valadity of this treatment,if anyone has tried it,,,,

Thanks you
Chuck

Another day of hell

Today was another day of vertigo. I have been so good with my salt intake and medications. Living 15 years with this and don't know what else to do. I am scared to get into the car with my girls and on pins and needles of when the next episode is going to happen. Does anyone have any success stories of surgery? I am going to talk to my doctor about surgery options this week.

Klonopin

I have had Meniers for 23 yrs-hearing gone on left side and now moved over to right side and on bad days, hearing at 38% understandability-good days 80%. Balance attacks coming at least once a day-was taking valium and meclazine to control- walking around in a fog. Had 3 steroid injections and they did not touch the balance but made the good hearing days more frequent, so that was good. Finally doc said no more shots and prescribed Klonopin taken 1 a day for 2 wks, then incr to 2 for 2 wks then 3 if needed so it builds up in system over time.

Attacks

Since this is my first day and have not taken any medication as of yet I have a quesitions.......

Since my first experience was in the middle of the night that started with terrible noise in my head then moving on to the vomit etc..etc.. I ended up in an ambulance at 3:30am and was hospitalized for 1 1/2 days.

I'm just afraid if this happens again what do I actually do? Do I go back to the hospital? Just continue to vomit with hopes of this stopping along with the noise?

Any/all comments are appreciated.

Thank you

What to expect?

This is my first day of being given the diagnosis of Menieres and have no clue what to expect. Has anybody dealt with this using natural product/organic, acupunture? Should I sStart a salt free diet? Excercies...how is this done, and what are the best/worst excercies...can you do yoga?

What about driving? I'm afraid to get in my car?

Not sure how to wrap my hands around this? Does anyone think this is a stress related disease?

Thank you

Acupuncture

I would really like to know anyone's experiences with acupuncture as it relates to this disorder?

Getting Worse

I have been a support board user for another concern for some time and it has been a big help. I thought I would try a Menire's support board because I really would like more information for this disease which I have had for about 3 years. The first year I noticed the symptoms I was bounced around from doctor to doctor until one finally suspected Menires. I was sent to the Otology Group at Vanderbilt University where I got the definite diagnosis. I was told very little about what I could do about Menires other than ditch the salt and learn to relax. Wow, tough to do.

Best thing you have found to Treat Meniere's

Exercise
4% (1 vote)
Medicine
13% (3 votes)
Sleep
8% (2 votes)
Acupuncture
0% (0 votes)
Diet
13% (3 votes)
Chiropractor
4% (1 vote)
Massage
0% (0 votes)
Supplements including Vitamins and Minerals
13% (3 votes)
Allopathic Doctor
0% (0 votes)
Naturopathic Doctor
0% (0 votes)
Non of the Above
29% (7 votes)
More than one from Above
4% (1 vote)
Something Else
13% (3 votes)
Total votes: 24
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