MenieresForum.com is an online community for people who suffer from Meniere's disorder.

Exercise?

I'm new to this forum. I wondered if people are really sticking to the low salt diet. It is hard. I have been doing pretty well but have been eating chocolate for the last several days. And I think it has caught up with me. I know I am getting an episode when my jaw feels tense and tight, And I start sweating a lot and have a little hard time swallowing. It always happens always in the morning. Any thoughts on other people's symptoms and how to keep from getting it in the morning.

intratympanic gentoamicin treatment

I'm a sufferer - 3 years. I'm looking into the above treatment - an injection into the inner ear. I'd like to hear from people that have tried it - or contemplated it but decided against. I have tried the 'search' tool but can't find any info. Surely this is a topic that must have been discussed here?
Whealie

new to meneires

Hi im Kath im 46 and a psychiatricnurse. I began having 'attacks' at the end of June 09 and they have been getting more frequesnt and more intense. They have happened at work on several occasions usually on a night shift!!! I have had numerous tests on my inner ear and have been diagnosed with meneires.

I am currently going through the painful task of salt reduction and am taking serc.

As my job involed driving for hours to get there I have secured a new job closer to home - only they dont know about the meneires.......

what's worked for me

Hello I'm new here.
I was diagnosed with Meniere's June of 2006. I had the usual symptoms.
It got so bad in 2008 I was having 4 vertigo attacks a day, almost every day, for a year.
Over in Japan they found that Meniere's is probably caused by herpes virus attached to the cochlea.
L-lysine is a cheap, OTC anti-herpetic you can get at Walmart, or any grocery or drug store.
I started taking 3000mg a day on an empty stomach in December of 2008. I take 1000mg 3 X daily, between meals on an empty stomach (if the lysine is taken with food it will not bind to the virus).

SERC

Has anyone tried SERC, or betahistine?
It is not offered in the U.S., but I've read they prescribed it other countries.

Does Meritin work...has anyone tried this....?

My name is Chuck Adams and new to this site,I live in Calgary Canada,and have been living with this disease for just over a year now,,,Glad to be on this forum knowing I am not alone,I have tried various things to no avail,and recently a friend let me know about Meritin.com,I apologise if this is a topic already covered,,But am curious to know of the valadity of this treatment,if anyone has tried it,,,,

Thanks you
Chuck

Another day of hell

Today was another day of vertigo. I have been so good with my salt intake and medications. Living 15 years with this and don't know what else to do. I am scared to get into the car with my girls and on pins and needles of when the next episode is going to happen. Does anyone have any success stories of surgery? I am going to talk to my doctor about surgery options this week.

Klonopin

I have had Meniers for 23 yrs-hearing gone on left side and now moved over to right side and on bad days, hearing at 38% understandability-good days 80%. Balance attacks coming at least once a day-was taking valium and meclazine to control- walking around in a fog. Had 3 steroid injections and they did not touch the balance but made the good hearing days more frequent, so that was good. Finally doc said no more shots and prescribed Klonopin taken 1 a day for 2 wks, then incr to 2 for 2 wks then 3 if needed so it builds up in system over time.

Attacks

Since this is my first day and have not taken any medication as of yet I have a quesitions.......

Since my first experience was in the middle of the night that started with terrible noise in my head then moving on to the vomit etc..etc.. I ended up in an ambulance at 3:30am and was hospitalized for 1 1/2 days.

I'm just afraid if this happens again what do I actually do? Do I go back to the hospital? Just continue to vomit with hopes of this stopping along with the noise?

Any/all comments are appreciated.

Thank you

What to expect?

This is my first day of being given the diagnosis of Menieres and have no clue what to expect. Has anybody dealt with this using natural product/organic, acupunture? Should I sStart a salt free diet? Excercies...how is this done, and what are the best/worst excercies...can you do yoga?

What about driving? I'm afraid to get in my car?

Not sure how to wrap my hands around this? Does anyone think this is a stress related disease?

Thank you

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